Home
9

Governance

9

Privacy Policy

9

Cookie Policy

Members
News & Media
Education & Training
9

Summer Academy For Global Privacy Law 2022

Engineering the data regulation(s) in an age of reform

9

BPH Privacy & Data Protection

Doctoral Seminars

9

Visiting Scholars Programme

Events
9

Meet the Author Series

9

Brussels Privacy Symposium

9

Data Protection In the World Series

9

Enforcing Europe Series 2

9

Data Sustainability Series

9

Ad-Hoc Events

Publications
9

Working Papers

Data Protection & Privacy

9

Workshop Summaries

From BPH Events

9

Reports

Projects
9

Data Protection in Humanitarian Action

Contact
9

Contact

The International Observatory on Vulnerable People In data protection

Resources

Disclaimer: The resources are arranged per thematic sections to facilitate the consultation. However, we are aware of the intersections and overlaps thereof. And that AI is generating new categories outside the traditional ones. We are also aware that pre-identifying categories of vulnerable people in data processing is not possible, vulnerability being a largely contextual and elusive concept. We are not claiming to be exhaustive, but to initiate a discussion.

Do you have any suggestions as to how improve the repository? Have you come across any resource that should be included in the repository? Contact us.

Ethnic and religious minorities & indigenous people

- Academic writings

Bottini Filho, L. (2021). Covid-19 Through Brazilian Courts: The Deserving and the Undeserving Vulnerable. German Law Journal, 22(6), 1098-1114, 2021. https://doi.org/10.1017/glj.2021.55

De Schutter, O., & Ringelheim, J. (2008). Ethnic profiling: A rising challenge for European human rights law. The Modern Law Review71(3), 358-384. https://doi.org/10.1111/j.1468-2230.2008.00697.x

Djordjević, L. (2020). Introduction: Ethnic Data and Minority Protection 1. The relevance of ethnic data. Journal on Ethnopolitics and Minority Issues in Europe, 19(2), 1-13. https://www.ecmi.de/fileadmin/redakteure/publications/JEMIE_Datensätze/Jemie_2020_2/01_Introduction_Djordjevic.pdf

Kukutai, T. & Taylor J. (Eds). Indigenous data sovereignty: Toward an agenda. Canberra: ANU Press, 2016.

Moodley, K., & Kleinsmidt, A. Allegations of misuse of African DNA in the UK: Will data protection legislation in South Africa be sufficient to prevent a recurrence? 2021; 21 (3): 125–30.  https://doi.org/10.1111/dewb.12277

Pap, A. L. (2020). Ethnic Data Protection and Collection: The Case of Hungary. Journal on Ethnopolitics and Minority Issues19(14). https://www.ecmi.de/fileadmin/redakteure/publications/JEMIE_Datensätze/Jemie_2020_2/02_Pap.pdf

Ringelheim, J., & De Schutter, O. (2009). The processing of racial and ethnic data in antidiscrimination policies: Reconciling the promotion of equality with privacy rights. Brussels, Bruylant. http://ssrn.com/abstract=1552321

Simon, P. (2007). “Ethnic” statistics and data protection in the Council of Europe countries: study report. https://searchlibrary.ohchr.org/record/8279

Zimmermann, M. (2001). Ethnic monitoring and data protection: The European context. Central European University Press.

 

- NGO Reports & Articles

EDRi (2021) Romani rights and biometric mass surveillance. https://edri.org/our-work/roma-rights-and-biometric-mass-surveillance/

IWGIA (2021) The Indigenous World 2021: Indigenous Data Sovereignty. https://www.iwgia.org/en/ip-i-iw/4268-iw-2021-indigenous-data-sovereignty.html

Research Data Alliance International Indigenous Data Sovereignty Interest Group (2019). CARE Principles for Indigenous Data Governance.” The Global Indigenous Data Alliance. www.gida-global.org.

- Data Protection Authorities' Guidance

Office of the Victorian Information Commissioner (2021). Understanding Culturally Diverse Privacy – Aboriginal and Torres Strait Islander peoples’ perspectives. https://ovic.vic.gov.au/privacy/understanding-culturally-diverse-privacy-aboriginal-and-torres-strait-islander-peoples-perspectives/

- Laws

European Court of Human Rights

Sinan Işık v. Turkey (Second Section) 21924/05 2010 https://hudoc.echr.coe.int/eng?i=001-97087 

- European Court of Human Rights

European Commission Subgroup on Equality Data (2021). Guidance note on the collection and use of equality data based on racial or ethnic origin https://ec.europa.eu/info/sites/default/files/guidance_note_on_the_collection_and_use_of_equality_data_based_on_racial_or_ethnic_origin_final.pdf

Research Data Alliance COVID-19 Indigenous Data Working Group (2020). “Data sharing respecting Indigenous data sovereignty.” In RDA COVID-19 Working Group (2020). Recommendations and guidelines on data sharing. Research Data Alliance. https://doi.org/10.15497/rda00052

- Policy documents

- Global Developments

- Others