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The International Observatory on Vulnerable People In data protection

Resources

Disclaimer: The resources are arranged per thematic sections to facilitate the consultation. However, we are aware of the intersections and overlaps thereof. We are also aware that pre-identifying categories of vulnerable people in data processing is not possible, vulnerability being a largely contextual and elusive concept. We are not claiming to be exhaustive, but to initiate a discussion.

Do you have any suggestions as to how improve the repository? Have you come across any resource that should be included in the repository? Contact us.

Ethnic and religious minorities & indigenous people

- Academic writings

Bottini Filho, L. (2021). Covid-19 Through Brazilian Courts: The Deserving and the Undeserving Vulnerable. German Law Journal, 22(6), 1098-1114, 2021. https://doi.org/10.1017/glj.2021.55

Kukutai, T. & Taylor J. (Eds). Indigenous data sovereignty: Toward an agenda. Canberra: ANU Press, 2016.

- NGO Reports & Articles

EDRi (2021) Romani rights and biometric mass surveillance. https://edri.org/our-work/roma-rights-and-biometric-mass-surveillance/

IWGIA (2021) The Indigenous World 2021: Indigenous Data Sovereignty. https://www.iwgia.org/en/ip-i-iw/4268-iw-2021-indigenous-data-sovereignty.html

Research Data Alliance International Indigenous Data Sovereignty Interest Group (2019). CARE Principles for Indigenous Data Governance.” The Global Indigenous Data Alliance. www.gida-global.org.

- Data Protection Authorities' Guidance

Office of the Victorian Information Commissioner (2021). Understanding Culturally Diverse Privacy – Aboriginal and Torres Strait Islander peoples’ perspectives. https://ovic.vic.gov.au/privacy/understanding-culturally-diverse-privacy-aboriginal-and-torres-strait-islander-peoples-perspectives/

- Laws

European Court of Human Rights

Sinan Işık v. Turkey (Second Section) 21924/05 2010 https://hudoc.echr.coe.int/eng?i=001-97087 

- European Court of Human Rights

European Commission Subgroup on Equality Data (2021). Guidance note on the collection and use of equality data based on racial or ethnic origin https://ec.europa.eu/info/sites/default/files/guidance_note_on_the_collection_and_use_of_equality_data_based_on_racial_or_ethnic_origin_final.pdf

Research Data Alliance COVID-19 Indigenous Data Working Group (2020). “Data sharing respecting Indigenous data sovereignty.” In RDA COVID-19 Working Group (2020). Recommendations and guidelines on data sharing. Research Data Alliance. https://doi.org/10.15497/rda00052

- Policy documents

- Global Developments

- Others